In 2007, Breast Cancer Network Australia (BCNA) launched its Hope & Hurdles Pack for women with secondary breast cancer. To date, more than 4,500 copies have been distributed free of charge to women. In 2011-12, BCNA reviewed Hope & Hurdles to ensure it continues to provide up-to-date, appropriate information for women with secondary breast cancer.
Surveys on women’s information needs and the current Hope & Hurdles resource were conducted with women with secondary breast cancer. Focus groups were held with women and health professionals. A reference group comprising health professionals, representatives of key professional bodies and consumer representatives was established to guide the review. Women with secondary breast cancer reviewed the design and content of the new resource, as did health professionals including the reference group members.
Based on the results of our surveys and focus groups, and feedback from the reference group, BCNA is redeveloping Hope & Hurdles to include new and updated information. A suite of optional booklets is being developed on the main metastases sites (bone, lung, liver, brain) and end of life issues, providing women with additional in-depth information on these topics. Women can access these booklets if /when they want them. This makes the resource more flexible and tailored to women’s individual needs. The new edition of Hope & Hurdles will be available in early September 2012.
There is a pressing need for tailored information for women with secondary breast cancer. Following our review, Hope & Hurdles will provide more tailored information to assist women with their diagnosis and support needs. With only around 40% of women with secondaries currently receiving the Hope & Hurdles resource, BCNA needs the vital support of health professionals to help us reach women with this important updated resource.