Tuesday, 13th November COSA-IPOS Joint Scientific Meeting 2012

Welcome to Country

Official Opening, Governor of Queensland, Ms Penelope Wensley AC

• Are we winning the war against cancer? - James F. Holland

Stirling Moorey has been identified as the Wiley-Blackwell speaker - he will be submitting a paper to the Wiley-Blackwell journal Psycho-Oncology based on this lecture.

These presentations will conclude with a Q&A session, Chaired by Phyllis Butow

• Implementing Psycho-Oncology: Evidence into practice.   Session opening. - Jimmie Holland
• "I know she's depressed. So what next?" - Stirling Moorey
• Patient-centred care in oncology – how can routine assessment of patient-reported outcomes help? - Galina Velikova
• Tailoring therapy to individual needs; Applying results of the MINDSET trial comparing Mindfulness-Based Stress Reduction to Supportive Expressive Therapy in breast cancer survivors - Linda Carlson

The inaugural President’s Plenary aims to provide a platform for dissemination of important initiatives and achievements of interest to cancer professionals globally. IPOS’s Vision, which was established in 2004, is that all cancer patients and their families throughout the world receive optimal psychosocial care at all stages of disease and survivorship. The aim is also for IPOS members and associates to provide the pre-eminent international resource for the dissemination of information and development of interventions that reduce cancers related to lifestyle and behaviours, and optimize care. Important initiatives have been driven by focal needs to see Psychosocial care available as a seamless part of holistic multi-disciplinary quality cancer care and Life-extending lifestyle changes promoted and supported through the expertise of behavioural and social scientists. In keeping with WHO targets that there is ‘no health without mental health’ IPOS has declared that cancer health must include mental health. This is in line with the patients’ declaration to ‘See us - not our disease.’                                                        

11:00 AM        Welcome / Opening
11:05 AM        Maggie Watson - “The William Rudder Memorial Lecture -  Impact through Endorsement: Global Engagement on the IPOS Quality Standard” 

11:35 AM        Barry Bultz  - IPOS International standard for quality cancer care: Distress as the 6th vital sign

11:45 AM        Bill Breitbart - Psychosocial care as a human right

11:55 AM        Luigi Grassi - Federation of National Societies

12:05 PM        Devon McGoldrick - LIVESTRONG

12:15 PM       Jeff Dunn - Advocacy/UICC

12:25 PM       Q&A / Session Close

With an emphasis on research that informs translation, this session will focus on survivorship care interventions. The four presentations showcase the depth and breadth of work taking place across Australia, including a focus on patient preferences for models of post-treatment care, evaluation of nurse-led and shared care models, and interventions to improve exercise and weight control.

• “This follow-up care would meet my needs, but I would still worry that problems with my health would not be found”: A cross-sectional survey of adult cancer survivors - Afaf Girgis
• Evaluating nurse-led and shared care models of post-treatment care for survivors of bowel and prostate cancer - Michael Jefford
• Evaluating telephone versus face-to-face modes of exercise intervention delivery to women during and following treatment for breast cancer - Sandi Hayes
• Living well after breast cancer: a feasibility trial of a weight loss intervention for women following treatment for breast cancer - Marina Reeves

• Basic radiobiological principles for the cancer health profession - Gerard Adams
• Addition of systemic therapies to radiotherapy - Gail Rowan
• Reducing morbidity in radiotherapy treatment - David Pryor
• New technologies - IMRT, IGRT, VMAT, Tomotherapy - Mike Fay

• Medicines matters: older cancer patients and polypharmacy. - Judith Lees
• Occupational exposure of healthcare workers to cytotoxic agents - Jim Siderov
• Access to cancer drugs - Is our current system broken? - Dan Mellor

• What prevents health professionals from engaging with consumer representatives in health service improvement - Stephanie Fletcher
• Consumer learning: education for consumers working with Cancer Cooperative Trial Groups - Jenny L Hughes
• Resilience workshop: one strategy to reduce burnout in oncology professionals - Jane Hutchens
• The impact of an online spaced education module on specialist palliative care nurses’ pain assessment capabilities - Tim Shaw
• Building the advocacy agenda for cancer clinicians in Victoria. - Rachel Whiffen
• An evidence-based systematic review of complementary and alternative medicine (CAM): Recommendations concerning the efficacy and safety of popular CAMs used by cancer patients. Part II. The best of the best in integrative cancer care - Carlo Pirri

• Radiotherapy utilisation rates in NSW and ACT [2004-06], a data linkage and GIS experience - Gabriel Gabriel
• A genome-wide association study of vulvar cancer in Aboriginal women resident in Arnhem Land - Rebekah McWhirter
• Tumor paint distinguishes tumor from normal tissue in mouse models of skin cancer - James Olson
• Irinotecan-induced mucositis is associated with mucus dysregulation and enteric nerve depletion - Daniel Thorpe
• Disparity in survival between Aboriginal and non-Aboriginal people with colorectal cancer in NSW - Kristie Weir
• Patterns of DNA mutations in resected early stage node negative lung adenocarcinoma. - Po Yee Yip

• The impact of the day care pharmacist on chemotherapy induced nausea and vomiting: A prospective, observational study - Christine V Carrington
• Who is at risk of poor quality of life after surgery for colorectal cancer? A prospective study - Ivana Durcinoska
• Nausea still the poor relation in antiemetic therapy? The symptom cluster triad of nausea, vomiting and appetite loss: individual and combined effects on quality of life during cancer treatment - Carlo Pirri
• Cancer of unknown primary (CUP): a population-based analysis of temporal change and socio-economic disparities - Linda Mileshkin
• Carcinoma of unknown primary: presentation and prognosis in South West Sydney - Erin B Moth
• Quality of life and functional status of patients treated with limb salvage surgery for lower limb bone tumors - Satish Madhavan Sasidharan

Including:
IPOS – Annual Business Meeting
CCQ - Proscan for couples investigator meeting
COSA – Oncology Social Work (OSWA) AGM (M4)
COSA – Psycho-Oncology Group (OZPOS) AGM (M3)
COSA – Familial Cancer Group AGM (M7&8)
COSA – Clinical Research Professionals Group AGM (M9)
COSA – Medical Oncology Group (MOGA) Meeting (P4)
COSA – Cancer Pharmacists Group AGM (P2)

• Perceptions of CUP – Results and Analysis of a National Survey of Australian Oncologists - Chris Karapetis
• The UK CUP-ONE trial: A Framework for clinico-translational research  - Harpreet Wasan
• The changing face of unknown primary cancer of the head and neck - Sandro Porceddu
• Imaging in the management of carcinoma of unknown primary - Jennifer Sommerville
• Molecular classification and DNA sequence profiling for actionable mutations in Carcinoma of Unknown Primary - David Bowtell

• Psychological and physical well-being in older and younger cancer patients: Different patterns and their mediators - Miri Cohen
• Cancer in the elderly: a longitudinal study of psychosocial, supportive and informational needs - Maggie Watson
• "Are age and self-reported health predictors of older incurable cancer patients' preferences for involvement in decisions about palliative chemotherapy and for receiving prognostic information?" - Martin HN Tattersall
• A Randomised Controlled Trial of Cognitive Existential Couple Therapy for early stage prostate cancer patients and their partners: use of a manualised therapy in a cancer affecting older men. - Jeremy Couper

• Cancer awareness among adolescents in Britain: a cross-sectional study - Richard Kyle
• Increased cancer awareness among British adolescents after a school-based educational intervention: a quasi-experimental before-and-after study - Amy Harding
• Australian Adolescent and Young Adults (AYAs) diagnosed with cancer: measuring the impact of a new book - Fiona E.J. McDonald
• Preferences for support services among adolescents and young adults with cancer or a blood disorder: Results of a discrete choice experiment - Jane E Ewing
• How do adolescent and young adult (AYA) siblings of cancer patients fit into current service delivery in Australia?: An exploration of health care professionals’ (HCP) perceptions. - Pandora Patterson

(Scientific theme: Survivorship – Psychological Issues)

• Psychological distress in long-term melanoma survivors - Philippa Youl
• When social support rises above all: Determinants of end-of-treatment and long-term anxiety and depression for Chinese female cancer survivors - Phyllis H. Y. Lo
• Losing your marble(s): A cross-sectional study of psychosocial outcomes in Australian testicular cancer survivors - Allan B Smith
• Socioeconomic and treatment-related risk factors for depression in a national cohort of Danish women 7-9 years after treatment for primary breast cancer - Søren Christensen
• A randomised trial of the effects of a multiple health behaviour intervention for colorectal cancer survivors on quality of life and psychosocial outcomes (‘CanChange’). - Anna L Hawkes

(Scientific theme: Screening for Disease)

• Facilitating uptake of colorectal cancer screening: does online tailored information help? - Carlene J Wilson
• Tailoring for colorectal cancer screening: Relationship between stage of decision to screen and Preventive Health Model variables - Ian T Zajac
• Adherence to faecal occult blood testing over multiple screening rounds: behavioural and demographic predictors of participation in a three year screening program. - Amy Duncan
• Awareness of human papillomavirus-related disease in young Australian men and women - Lyndel Shand
• Skin tone dissatisfaction and sun exposure: appearance motivations for tanning in Australian secondary school students. - Amanda D Hutchinson

• Describing oncology social work and practice in Australia: what is the current “state of play”? - Kim Hobbs
• The space between: innovative use of communication technology to bridge the barriers to psycho-oncology services - Carolyn Messner
• What is the doctor saying? What are the parents hearing?: Insights from social work conversations in paediatric oncology - Angela E Richards
• Conversations for my daughter: Opportunities to explore the narrative and meaning in haematology at end of life. - Annette E Polizois

(Scientific theme: Psychometric evaluations)

• Establishing reliability of the Symbolic Assessment of Fatigue Extent (SAFE) - Subathra Jeyaram
• Measuring the impact of treatment-induced menopause: psychometric evaluation of MENQOL - Margaret I. Fitch
• The Parental Cancer Questionnaire: Scale structure, reliability and validity - Janelle V Levesque
• Psychometric properties of the Cancer Health Literacy Test - Levent Dumenci
• Testing of the psychometrics of “fear of recurrence” - Chinese version (FOR-C) in lung cancer patients after surgery in Taiwan - Yun-Hsiang Lee

(Scientific theme: Paediatric Issues)

• Temperament, personality, and quality of life in pediatric cancer patients - Louis A Penner
• Grandparents of children with cancer need better support: A controlled prevalence study of distress in grandparents of children with, and without, cancer. - Claire E Wakefield
• Neuropsychological assessment recommendations after childhood brain tumor treatment: Barriers to implementation at home and school. - Claire E Wakefield
• Addressing the educational and psycho-social needs of children and adolescents diagnosed and treated for cancer in Australia - Barb Donnan
• Bridging the gap between hospital and school: The use of video-conferencing in childhood cancer patients. - Sarah J Ellis

(Scientific theme: Advanced cancer)

• Cluster analysis of perceived family functioning among an American sample of advanced cancer patients in the palliative care setting - Talia I. Zaider
• Patterns of psychological distress among Chinese women diagnosed with advanced breast cancer - Wendy Wing Tak Lam
• A qualitative analysis of advanced cancer patient and carer responses to a communication support intervention prompting early discussion of prognosis and end-of-life care - Adam Walczak
• "One step forward, one step backward". Subjective experience of grief reactions as time goes by: an interpretative phenomenological analysis. - Léonor M Fasse
• “Can we detect vulnerable individuals facing end-of-life and death of their spouse after cancer? Results of a longitudinal study pre- and post-death.” - Léonor Fasse

Including Joint Poster Discussion 3:20 - 4:00pm

• Good death among elderly cancer patients in Japan based on perspectives of the general population - Tatsuo Akechi
• Smoking behaviour of students in the University of Ibadan, Nigeria - Chioma Asuzu
• Distress in patients and their natural caregivers early after the diagnosis of inoperable lung cancer - Michele Aubin
• Psychosexual effects of gynaecological cancer survivors in India - Indrani BasuMallik
• Prostate cancer – men aren’t the only ones - Margaret Bennett
• Integration of the health team to address the patients’ emotional aspects: Caring for the whole patient - Cristiane D. Bergerot
• Reports from patients with advanced cancer and their caregivers of their health related quality of life (HRQoL). - Charlotte Bradley-Peni
• Posttraumatic growth in adult cancer survivors: a critical review of empirical research using the organismic valuing theory of growth  - Anne Brédart
• Mental disorders in people diagnosed with cancer: Findings from the 2007 Australian National Survey of Mental Health and Wellbeing - Joanne Brooker
• Stressful events and coping strategies among postmenopausal women during active treatment for primary or recurrent breast cancer.  - Maria Brovall
• Employee to employer communication skills: Balancing cancer treatment and employment - Richard F Brown
• African American cancer patients’ perceptions of participation in a phase I,II, or III clinical trial: What do refusers say? - Richard F Brown
• Cognitive performance and psychosocial well-being of cancer patients: A preliminary study - Timothy H. Y. Chan
• Chinese breast cancer patients undergoing radiotherapy: role of fatigue and its influences on their quality of life - Irene K.M. Cheung
• Predictors of engagement in an online psychological support program for men treated for prostate cancer - Katherine Chisholm
• Using the distress thermometer and the hospital anxiety and depression scale in Italian women newly diagnosed with breast cancer - Cristina Civilotti
• The implementation of a mindfulness group programme throughout the state of Queensland - Samantha Clutton
• Intentions to use telephone and face-to-face support services: Attitudes of Australian men following prostatectomy. - Denise Corboy
• Patient preferences for adjuvant radiotherapy in early breast cancer – an Australian sub-study of the International TARGIT trial. - Tammy Corica
• Informational needs and deficits of Latinas diagnosed with breast cancer - Rosario Costas-Muniz
• Demographic factors, referral patterns and clinical correlates in Adjustment Disorder in cancer patient referrals to an in-house liaison psychiatry service in a tertiary care oncology hospital in India - Jayita Deodhar
• Evaluation of a training module on client centered counseling in cancer conducted for volunteers working in oncology in a tertiary care cancer hospital in India - Jayita Deodhar
• Does it do what it says on the tin? : An evaluation of using a licensed communication skills training product within a regional education strategy to increase capability and capacity in end of life care - Sue Duke
• “It’s a very difficult balance”: A qualitative study of cancer specialists’ perceptions of discussing Complementary and Alternative Medicine with their patients - Jaklin A Eliott
• Association among depression, demoralization, and posttraumatic growth in cancer patient: preliminary study - Chun-Kai Fang
• The physician-patient relationship and the experience of pain: A study of women undergoing diagnostic mammography  - Ingeborg Farver
• "What should be taught to future clinicians and health-care professionals regarding grief reactions  in the cancer field?" - Léonor Fasse
• Current definitions and measures of quality of life in pediatric palliative care: A systematic review - Léonor Fasse
• A systematic review comparing quality of life definitions and measurement strategies between adult palliative care and pediatric palliative care - Léonor Fasse
• Daily bad news in stage IV cancer inpatients - Roberta Fenili
• Lessons learnt from setting up a multi-centre cohort study in the UK: A cohort study to explore recovery of health and well-being following primary treatment of colo-rectal cancer (CREW (ColoRectal Wellbeing) cohort). - Debbie Fenlon
• Why don’t people get screened for cancer? Preliminary results from an online survey reaching under and never screened populations - Brooke Filsinger
• Implementing a national strategy for achieving person-centered care: the need for multiple strategies - Margaret I. Fitch
• Effects of family therapy on the communication of patient suffering from cancer and its family. - Cécile Flahault
• An exploratory study on factors associated with patient preferences for communication - Maiko Fujimori
• Hope & Hurdles: An information resource for women with secondary breast cancer - Annie Gayed
• Applying an evidence-based approach to development and evaluation of resources for families facing advanced cancer: Lessons learned from the “Consumer Toolkit” - Afaf Girgis
• “I know you think there is this system: but this is what actually happened to me?” Translating cancer research into a responsive supportive care system of services, programs and policies. - Ainslie Hannan
• Cancer patients’ opinions of psychosocial screening. - Josette JEHM Hoekstra-Weebers
• “Where now?” – Pilot study of a course for people living beyond cancer - Lesley Howells
• Are there differences between the written and the oral means of screening psychosocial distress with the Distress Thermometer in cancer patients? - Sheng Hui Hsu
• The bidirectional relationships of coping strategies and distress: a study among Taiwanese newly-diagnosed breast cancer patients. - Wen-Yau Hsu
• Developing a nationally collaborative framework for psychosocial oncology research:  a review of the UK NCRI psychosocial oncology clinical studies group. - Nick Hulbert-Williams
• Spirituality and meaning in life of the Japanese female breast cancer patients - Chiaki Ihara
• Depression predicts lower use of services in gynaecological cancer survivors - Monika Janda
• A randomized, controlled trial of meditation for women with breast cancer - SunJoo Jang
• ‘Living beneath the sword of Damocles’: Perceptions of risk and fears of cancer recurrence amongst Australian melanoma survivors at high or moderate risk of developing new primary disease. - Nadine A Kasparian
• "The critical ingredients of success": Evaluation findings of a supervised exercise programme for men who have had a diagnosis of cancer. - Colleen W Kendrick
• Psychosocial impact of a cancer diagnosis on patients and families in Subsaharan Africa. - David M Kinyanjui
• Men with cancer using Complementary and Alternative Medicine (CAM): variations in significant others’ involvement - Nadja Klafke
• Attitude to psycho-oncology and palliative care in Serbia today  (descriptive presentation) - Tamara Klikovac
• Psychological support for parents, teens and adolescents during the treatment when a child or teen dies at the Oncological department - Tamara Klikovac
• Population survey on Swedish women’s attitudes towards tailored mammography screening based on individual risk for breast cancer - Marie Koitsalu
• Are caregivers of cancer patients depressed? - A single centre experience from South India. - Kirushna Kumar Kosanam Subramanian
• Factors influencing the treatment choices in early stage newly diagnosed carcinoma cervix patients - a single centre experience from South India. - Kirushna Kumar Kosanam Subramanian
• Targets for psychosocial treatment: family and work after breast cancer - Galina Kuznecova
• Couples coping with cancer: A qualitative study of the views of health care providers - Sylvie Lambert
• Exploration of the experiences and decision making of older people with cancer. - Heather Lane
• Transition to follow-up care after breast cancer treatment in rural Australia: Women’s experiences of service provision - Sheleigh Lawler
• A cognitive behavioural intervention on biopsychosocial factors in patients with cancer fatigue - A comparative, correlational study. - Isabel Leal
• Quality of life, posttraumatic stress and posttraumatic growth in breast cancer survivors - Isabel Leal
• The epidemiology of psychiatric disorders among women with breast cancer in South Korea: analysis of the national registry data - Byung Ook Lee
• Pre & post effects of the community support services on the QOL of cancer patients in Hong Kong - Tammy Yuk Chun Leung
• Benefit finding in parental cancer: Prevalence, types and predictors - Janelle V Levesque
• Posttraumatic growth levels and their influencing factors among Chinese breast cancer patients - Jun-E Liu
• Complementary and alternative medicine use of women with breast cancer: Self-help CAM attracts other women than guided CAM therapies - Deborah N.N. Lo-Fo-Wong
• Arthralgia with aromatase inhibitors: association with quality of life, emotional state and fear of recurrence - Clementine Lopez
• Anxiety and depression during radiotherapy treatment: A comparison of touchscreen computer administration of the Hospital Anxiety and Depression Scale and single-item self-report measures - Lisa J Mackenzie
• Establishing a multidisciplinary service, The Hunter & Northern NSW Youth Cancer Service, Australia - Karen A Matthews
• Adolescent and Young Adult (AYA) Task Force: identifying and evaluating educational and psychosocial needs of AYA’s. - Lina Mayorga
• The importance of health literacy to adolescent and young adult cancer patients - Fiona E. J. McDonald
• Ovarian cancer patients’ expectations of palliative chemotherapy: the fine line between hope and misunderstanding - Rebecca L Mercieca-Bebber
• The lived experience of breast cancer survivors participating in challenge-based peer support programs: The transformative effect of riding motorcycles - Bronwyn A Morris
• Need for psychosocial care – expressed by patients in primary treatment - Fritz A. Muthny
• Prevalence of ‘Problem List’ symptoms among oncology outpatients and relationship with distress. - Louise Nelson
• Psychosocial concerns and coping strategies of patients with advanced stage Hepatobiliary cancer - Kittikorn Nilmanat
• The effect of a specific music therapy song writing protocol on adult cancer patients mood - a mixed method, multi-site, randomized, wait-list controlled trial - Emma K O'Brien
• Identifying emotion in text generated from online interventions for people who have survived cancer - Erin O'Carroll Bantum
• Early palliative care improves the prognosis of cancer patients - Masatomo Otsuka
• Posttraumatic stress symptoms as an important reaction in children who donate their stem cell to their siblings with cancer - Miwa Ozawa
• Posttraumatic stress symptoms among parents of childhood cancer in transition from inpatient to outpatient settings. - Shuichi Ozono
• Comparison of quality of life between cancer survivors and people with chronic stable diseases - Jose Pais-Ribeiro
• From a distance: the influence of dispositions and self-distanced analyses on affect among parents of pediatric cancer patients - Louis Penner
• What happens online? Pilot evaluation of how breast cancer survivors use the non-guided Internet-based self-management intervention BREATH. - Judith J.B. Prins
• My Changed Body: Breast cancer, body image, distress and self-compassion - Astrid Przezdziecki
• Avoidance of disgust's elicitors in colorectal contexts:  mindfulness predicts avoidance when avoidance makes sense - Lisa M Reynolds
• Factors influencing primary care physicians’ decision to order prostate-specific antigen (PSA) test for healthy men - Afsaneh Roshanai
• The effects of rumination on illness-related future thinking in young people: Implications for promoting resilience after cancer - Ursula M Sansom-Daly
• Resilience in cancer survivors after allogeneic hematopoietic stem cell transplantation - Andrea Schumacher
• Correlates of post-traumatic stress disorder (PTSD) and post-traumatic growth (PTG) in oncology populations: A systematic review and meta-analysis. - Lyndel K Shand
• Supporting Men, Supporting Women: Development of a web-based information and support resource for support partners of women undergoing genetic testing for breast cancer risk - Kerry A Sherman
• Clinical bio-psycho-social risk factors for depression in lung cancer patients: a comprehensive analysis using data from the Lung Cancer Database Project - Ken Shimizu
• Comparison between patients with hepatitis c and hepatocellular carcinoma in quality of life and its related factors during receiving treatment - Shiow-Ching Shun
• “There is no information for us” - the development of the first Victorian gay men’s prostate Cancer Support Group. - Amanda Spillare
• The use of a Personality/Stress Questionnaire in the prediction of cancer or CHD in healthy probands  - J Spisz
• Experience of death conference at general hospital setting in Japan    - Koji Sugano
• Associations between depressive mood, health behaviour, and diurnal cortisol slopes among women with breast cancer - Rie Tamagawa
• A systematic review of the recent quality of life studies in adult extremity sarcoma survivors: Need for further research to assess role of psychological distress in influencing overall outcomes - Melissa Huiliang Tang
• Fear of cancer recurrence in young breast cancer survivors: the role of meta-cognitive style and disease-related factors.  - Belinda Thewes
• Intrusive thoughts after prostate cancer diagnosis and surgery - Thordis Thorsteinsdottir
• Thinking about one’s own death when diagnosed with prostate cancer. - Thordis Thorsteinsdottir
• Cancer patients’ rehabilitation in Europe: results from the Eurochip-3 project - Luzia Travado
• Breast cancer meanings: a cognitive-developmental study - Luzia Travado
• Sense-of-Coherence in breast cancer: is it protective of psychological morbidity? - Luzia Travado
• Expected friends reactions to cancer disclosure: an exploratory vignettes study among Japanese cancer survivors - Miyako Tsuchiya
• Building a psyco-oncology unit at a cancer center. Is this really one of the ways to break the stigma related to psychiatric care among cancer patients? - Ozen Onen Sertoz
• Research informing practice: How can we translate hope in the palliative care practice? - Mélanie Vachon
• Follow-up contacts with the psychosocial care team after screening for distress in newly diagnosed cancer patients - Ging-Long Wang
• Testing reciprocal relationships between coping and post-traumatic growth among breast cancer patients: a cross-lagged structural equation study of approach, emotional, and disengage coping. - Wei Ting Wang
• Spiritual wellbeing in caregivers of geriatric cancer survivors: the association of peace, meaning, and faith to psychological morbidity and resilience - Hayley S Whitford
• The impact of cancer on development in adolescent and young adults: Perspectives from patients and health professionals. - Helen Wilson
• Death anxiety reduction after attending the psychological group tackling spiritual concerns - Kam Fung Wong
• My Choice, My Voice: End of life planning with adolescents and young adults  - Sima Zadeh
• Depression and anxiety in breast cancer patients undergoing chemotherapy - Nor Zuraida Zainal

• Progression free survival vs overall survival: An example from randomised phase III trial with Axitinib (AXIS) in metastatic renal cell carcinoma - Mahmood Alam
• A personalised approach to treating cancer; a cross-sectional review to understand public perception and its capacity to influence clinical outcomes - Mahmood Alam
• Melanoma shared care, a tripartite approach for survival. The patient, their GP and their specialist - A survivorship project. - Colleen Berryman
• A case of delayed methotrexate clearance following administration of a complementary medication containing chlorophyll - Sally L Brooks
• Application of the repertory grid technique to explore medication understanding in patients receiving cancer therapy for breast cancer - Christine V Carrington
• Nicotinamide for skin cancer chemoprevention - Diona L Damian
• Five-year survival rates for patients (pts) with metastatic melanoma (MM) treated with ipilimumab (IPI) in phase II trials - Kevin Chin
• Safety of ipilimumab in patients (pts) with untreated, advanced melanoma alive beyond 2 years: Results from a phase III study - Kevin Chin
• An Australian translational study to evaluate the prognostic role of inflammatory markers in patients with metastatic colorectal cancer treated with bevacizumab (Avastin^TM) [ASCENT] - Stephen Clarke
• A randomised controlled trial evaluating Insight, a web-based cognitive rehabilitation programme, in cancer survivors with self-reported cognitive impairment - Haryana Dhillon
• Merkel cell carcinoma in South Western Sydney and Sydney local health districts: a six year retrospective review - Kirsten J Duggan
• Study protocol: optimising men’s uptake of faecal occult blood test screening for bowel cancer: a population based randomised controlled trial - Amy Duncan
• The diagnostic accuracy of the 7-point checklist to assess pigmented skin lesions in primary care.  - Jon Emery
• A randomized, phase Ib/II trial of rilotumumab (AMG 102; ril) or ganitumab (AMG 479; gan) with panitumumab (pmab) vs pmab alone in patients with wild-type (WT) KRAS metastatic colorectal cancer (mCRC): primary and biomarker analyses - Eduard Gasal
• To analyse the toxicity and efficacy of concomittant chemotherapy or cetuximab and radiotherapy (chemoradiation) amongst patients of head and neck cancers at the Alan Walker Cancer Centre, Northern Territory from 2010 - 2012 - Ajay Gupta
• Improving the management of chemotherapy toxicities in haematological cancer patients: A phase II randomised controlled trial of the Patient Remote Intervention and Symptom Management System (PRISMS) - Rose Kamateros
• Exploratory landmark analysis of metastatic melanoma patients treated with ipilimumab - Hansoo Kim
• Projecting long term overall survival benefit in metastatic melanoma patients treated with ipilimumab using extrapolation methods - Philip McCloud
• Perceived barriers to optimal lung cancer care in North Queensland: a qualitative study. - Shivanshan Pathmanathan
• Is there a need for routine cardiac evaluationpre-anthracycline chemotherapy in breast cancer. - Dagmara M Poprawski
• Changes in adiposity, gastro-oesophageal reflux and obesity-related hormones following a 24-week exercise intervention in men with Barrett’s oesophagus - Marina M Reeves
• Vemurafenib and phototoxicity in melanoma - Carol A Rice
• SQiD  – Testing the performance of a Single Question in Delirium case finding for clinical oncology. - Megan B Sands
• Family connect: a randomised controlled trial to improve psychosocial outcomes for cancer carers. - Joanne Shaw
• It’s all about the numbers! Strategies to Increase Melanoma Trial Participation - Victoria Steel
• Peri-operative chemotherapy improves relapse-free survival for urothelial carcinoma of the bladder treated by radical cystectomy, but remains under-utilised in an Australian tertiary referral institution - Ali Tafreshi
• A retrospective clinical audit comparing neuropathy associated with two different schedules of Oxaliplatin in the treatment of Metastatic Colorectal Carcinoma - Thomas Vien
• A phase 1b study of trebananib (AMG 386) in combination with pegylated liposomal doxorubicin (PLD) or topotecan (T) in women with recurrent ovarian cancer - Shirley S Wong
• Outlining the protocol for an innovative combined nutrition and physical activity intervention for cancer survivors. - Stephanie Zrim

• Geographic remoteness, area-level socioeconomic disadvantage and colorectal cancer: a cross-section multilevel study - Peter D Baade
• Association between breast cancer incidence and latitude in Mainland Australian Women - Kellie Bilinski
• Incidence, mortality and survival of rarer head and neck cancers in New South Wales - Ingrid Boehm
• Oncology patients presented to emergency department, before and after the establishment of resident oncology service: experience in Goulburn Valley Health - Yu En Y E Chia
• Using routinely collected cancer data to infer risk factor patterns - Susanna M Cramb
• Geographic remoteness, area-level socioeconomic disadvantage and breast cancer: a multilevel study - Paramita Dasgupta
• Patients’ and health professionals’ perspectives on the outcomes and conduct of multidisciplinary cancer meetings (MDMs). - Bianca Devitt
• The development of evidence based guidelines on the conduct of multidisciplinary cancer meetings (MDMs). A modified Delphi study. - Bianca Devitt
• Are radiation oncologists aware of health literacy amongst people with cancer treated with radiotherapy? - Haryana M Dhillon
• What are people with cancer are told about radiotherapy and how do they perceive it?  - Haryana M Dhillon
• Indigenous women with gynaecological cancers have poorer survival than non-Indigenous women: explained by stage, comorbidity and treatment uptake - Abbey Diaz
• When age really does matter - Julia Drake
• Localised versus centralised nurse delivered telephone services for people in follow up for cancer: Opinions of cancer clinicians - Ivana Durcinoska
• Diagnosing cancer in the bush: a mixed methods study of diagnostic intervals in people with cancer from rural Western Australia. - Jon Emery
• A formative evaluation of nurse cancer care coordinators: building a platform for ongoing evaluation and development. - Louise M Freijser
• Variation in the surgical management of oesophageal carcinoma in NSW, 2001-2007 - David Goldsbury
• Aboriginal cancer care at Peter Mac: connecting and responding (ACCAP) - Alison Hocking
• Is ginger supplementation effective in ameliorating chemotherapy-induced nausea and vomiting? - Elisabeth Isenring
• Australian general practitioners’ preferences for inter-professional communication and a collaborative approach when caring for people diagnosed with cancer - Claire Johnson
• A matter of opinion: age differences in colorectal cancer patients’ and physicians’ views on chemotherapy treatment decisions - Mikaela Jorgensen
• The social environment and cancer survivorship: critical factors contributing to recovery - Lynette Joubert
• Pricing of anti-cancer drugs approved for use in Australia since 2000 - Deme J Karikios
• Changes in oncology inpatient care over a nine year period at a major Australian centre - Richard C Khor
• Exploring opportunities for service improvement to optimise outcomes for older people with cancer. - Meinir Krishnasamy
• Feasibility and utility of a comprehensive cancer survivors database - Marleesa Ly
• Using hepatitis B registry data to improve liver cancer prevention at primary care level - Ximena Masgoret
• Improving the cancer patient experience - Clare McGinness
• Moderate-to-severe symptoms are prevalent among patients attending a breast cancer survivorship clinic - Joanne Mortimer
• Towards a smart cancer registry - Anthony Nguyen
• Cancer reporting from OCR free-text pathology reports - Anthony Nguyen
• Living with dysphagia: insights and implications for speech pathology services for patients in the survivorship phase of head and neck cancer - Rebecca Nund
• Fast tracking pharmacy - Carol A Rice
• Treatment and survival outcomes for prostate cancer for Aboriginal men in New South Wales (NSW) Australia - Jenny Rodger
• Socio-demographic factors and their impact on the number of resections for patients with recurrent glioblastoma - Yi Sia
• Supporting best practice lung cancer care - Sue Sinclair
• Developing an allied health service in a new radiotherapy centre in Melbourne’s West - Laurelle Stalker
• Consumers' and health professionals' perceptions of radiotherapy and the inconvenience associated with its access and utilization - Puma Sundaresan
• Utilisation and acceptability of an E-health strategy to facilitate care of breast cancer survivors - Siaw Sze Tiong
• Australian Mesothelioma Registry - Grace Kwaan
• Development of an electronic platform for patient self-reporting of adverse-events during cancer treatment. Involvement of patients and professionals - Galina Velikova
• Optimising cancer care in Victoria: views and opinions from cancer clinicians - Victoria White
• Stop the smokes for a healthy bub: addressing smoking in pregnant Aboriginal and Torres Strait Islander women. - Pip Youl
• Factors associated with diagnostic and treatment intervals and the treatment received by prostate cancer patients in Queensland - Danny R Youlden
• Geographical variation in survival from prostate cancer in relation to disease stage at diagnosis: an analysis of data from the NSW Central Cancer Registry - Xue Qin Yu
• Melanoma rates continue to increase in the elderly: an analysis of Queensland melanoma incidence rates up to 2009 - Dannie Zarate

• Safety of tele-oncology and chemotherapy delivery in rural centres.  - Bryan A Chan
• Rapid regression of life threatening ALK positive epithelioid inflammatory myofibroblastic sarcoma following single agent crizotinib therapy. - Karen Gomes
• Correlating Ki67 and other prognostic markers with oncotype DX recurrence score in early breast cancer - Bob T Li
• Adjuvant chemoradiotherapy in carcinoma of gallbladder : a single institution study with 10- year follow up. - Neeraj Rastogi
• Aggressive behaviour of cutaneous squamous cell carcinoma in patients with chronic lymphocytic leukemia - Jonathan M Tomaszewski

• Discussing expensive anticancer drugs – a survey of the opinions of patients with advanced cancer - Linda Mileshkin
• Timelines in lung cancer diagnosis and treatment in South West Sydney - Jesmin Shafiq
• Impact of prevention on future cancer incidence in Australia - Philippa H Youl

The discussant, Ben Britton (Psycho-Oncology Service, Calvary Mater Newcastle) will present on the integration of self-directed interventions in clinical practice and how these can be used by health professionals to enhance the care provided to patients and their families. To our knowledge, this is the first symposium on self-directed interventions at IPOS.

• Addressing common barriers to using self-directed, coping skills training booklets for couples facing cancer - Sylvie D Lambert
• ‘iCanCope: the internet Cancer Coping guide’ – a preliminary evaluation of an online self-directed intervention for reducing distress in early stage cancer patients. - Lisa Beatty
• My Road Ahead: Navigating life after prostate cancer. Preliminary results from an RCT examining the efficacy of an online psychological support program for men treated for prostate cancer - Addie C Wootten
• "Coping with chemotherapy": Evolution of a self-directed stress management training program - Paul Jacobsen

• Narrative accounts of family loss across the generations - David W Kissane
• A challenge for psycho-oncologist working in a multicultural clinical context: dealing and responding appropriately to elderly patients and relatives ways of coping and distress. - Darius Razavi
• “Grandma is not well”: Children’s perceptions when parents and grandparents have cancer - Gil Goldzweig
• Coping with cancer: Addressing the needs of older couples - Brian Kelly

• Informing service delivery: experiences from a randomised controlled trial comparing minimal contact self-management versus an individualised tele-based cognitive behavioural intervention - Sandy D Hutchison
• Collecting and linking patient reported outcomes to clinical and cancer registration data:  preliminary results from a feasibility study using the electronic Patient reported Outcomes (ePOCS) system - Penny Wright
• Characterizing patterns of engagement with a social-networking intervention to treat cancer-related distress - Jason E. Owen
• Benefits of participation in professionally-facilitated online support groups: quantitative and qualitative outcomes for patients, survivors and family caregivers - Deborah McLeod
• Connecting rural cancer patients and their families and carers with psychosocial support: the development of a website using a Participatory Action Research Framework and Behavioural Change Theory - Kate M Gunn

• Reasons for and for not disclosing, illness perceptions, and psychological adjustment in Indian caregivers of cancer patients - Mahati Chittem
• Satisfaction with cancer-related information – associations with information-seeking style and decision self-efficacy - Berit Kjaerside Nielsen
• A qualitative and quantitative exploration of family involvement in cancer consultation communication and decision-making - Ilona Juraskova
• Patient, clinician and consumer views on inter-professional psychosocial communication within the cancer care team and the use of a psychologists’ referral letter feedback template. - Belinda Thewes
• The role of religious and existential well-being in the context of hereditary disease: Prevention, family communication, and psychosocial adjustment to cancer - Bronwyn A Morris

• Cognitive function & fatigue in colorectal cancer (CRC) patients: a prospective, longitudinal controlled study  - Haryana Dhillon
• The effect of psychosocial interventions for patients with cancer on psychoneuroimmunologic outcomes: A systematic review - Richard F Brown
• Self-reported cognitive failures in recently treated breast cancer survivors - Ali Amidi
• Improving the ecological validity of cancer-related cognitive assessment: Virtual reality testing of prospective memory following chemotherapy treatments for breast cancer - Heather J. Green
• Qualitative and quantitative analysis of cognitive problems in cancer survivors attending a group cognitive rehabilitation program - Heather J. Green

• High risk clinic attendance among daughters of breast cancer patients - Sarah Ormseth
• Diagnostic delay in colorectal cancer: Sociodemographic and communication factors - H. Rogers
• Emotional predictors of bowel screening avoidance:  the unearthed role of disgust - Lisa M Reynolds
• The effect of risk perceptions on screening behavior among African and Euro-American Men - Joan R. Bloom
• Perceptions of melanoma risk among Australian adolescents: Is this the greatest barrier to sun protection adherence and what can we do about it? - Jordana McLoone

The aim of this symposium is to provide a forum for discussion of the complex supportive care needs of patients with head and neck cancer, including discussion of ways to translate evidence into clinical practice.                                        

• More than just a pain in the neck – improving our understanding and responses to the supportive care needs of patients with head and neck cancer - Jane Turner
• A personal account of head and neck cancer - Marty Doyle
• Symptom clusters: a theoretical overview of emerging evidence - Skye T Dong

People affected by cancer, health professionals involved in their care and the health system have an interest in long-term outcomes of clinical trials.

When people are followed for their long-term survival outcomes (sometimes 15-30 years or more) the costs and logistics of follow-up can be complicated and it is difficult to obtain funding for this.

In an era of electronic databases, e-medical records and personal health records it seems that long-term follow-up could be streamlined, saving resources and ensuring more complete data collection.

However, we need to be designing and planning our clinical trials in a way that facilitates smooth and log-cost data linkage.

This session aims to address the current problems and potential solutions, it will also consider the workforce issues relevant to clinical trials.

• Video presentation of Jane Barrett "It's a very lonely cancer" - Video presentation
• Identification of information and support needs of people affected by Cancer of Unknown Primary (CUP) and development of an evidenced-based multimodal suite of information and support resources. - Kath Skinner
• Experiences of people affected by cancer of the unknown primary: what do we know and where are we headed? - Penny Schofield
• A dedicated cancer of unknown primary (CUP) clinic: a first year’s experience - Linda Mileshkin

• Responding to cognitive concerns (ReCog): group cognitive rehabilitation for cancer survivors has the potential to enhance cognitive function and quality of life  - Heather J Green
• Unexpected winners and losers - chemotherapy - Jim Siderov
• Unexpected winners and losers - Formulations of therapy - Ben Stevenson
• Losing cultural blindness and winning better cancer outcomes for Aboriginal and Torres Strait Islander people - Victoria Jones

Chair: Judy Bauer

• Nutrition an essential ingredient for cancer care - Judy Bauer
• The impact of micronutrients on gene expression in prostate cancer: lycopene - Olivia RL Wright
• Association between vitamin D status and breast cancer risk in an Australian population: an observational case-control study - Kellie L Bilinski
• Optimising nutrition outcomes for patients with head and neck cancer through innovative pre-treatment intervention strategies - Teresa Brown
• The effect of prostate cancer not treated with ADT, on bone mineral density: the Dubbo Epidemiology Osteoporosis Study. - Annie C M Lassemillante
• The impact of early and intensive medical nutrition therapy on nutritional, functional, fatigue and treatment outcomes in lung cancer patients receiving (chemo)radiotherapy - Nicole Kiss
• Changes in quality of life and nutritional status following high dose conditioning and stem cell transplantation - Yun-Chi YH Hung

• Topical immunotherapy with diphencyprone for cutaneous metastatic melanoma - Diona L Damian
• Renal transplant patients' sun protection: correlates and comparison with Melbourne residents - Suzanne Dobbinson
• Clinical skin examination outcomes of the randomised controlled skin awareness trial among men 50 years or older - Monika Janda
• Is completion lymph node dissection after a positive sentinel lymph node biopsy for cutaneous melanoma always necessary? - a meta-analysis and systematic review - Vinayak Nagaraja
• Trends in site-specific melanoma in Queensland: are we witnessing the impact of public health campaigns? - Philippa Youl
• Melanoma thickness and frequency of nodular melanoma are more strongly related to socioeconomic disadvantage in men than in women - Dannie Zarate